Thursday, September 17, 2009




We are home again, getting back to normal life. Bobbinog is slightly off, but thats due to the Doxirubicin, which is the orange chemo. He had a drip running for 48 hours. He is normally a bit off the day after as he can't get the anti nausea medicine at home as there is nothing for his age group in liquid or tablet form available. In the hospital they inject Zofran, which is anti nausea meds, in every 8 hours. But its ok, he only battles for a day then he is fine. We just watch and make sure his food intake is good. Well life pretty much goes back to normal or as close to it as possible now. I have work, the other 4 kids have school, Dad's working away, so he continues as normal too. 3 months ago we would never have thought this to be our new way of life, but things change over night as we have seen. Cancer is now a part of us forever. I am really a paranoid mom now. I check all the kids tummy's for lumps now. After baby has the tumour removed and finishes off his chemo, the blood tests will continue for 5 years. If he is clear then we will still keep checking him as he has the cancer gene so he has a greater chance to develop cancer again later. He will be testing for the rest of his life and may even pass the gene on to his kids and grand kids..... But not to get morbid... at least we know, are aware and can deal with it one day at a time.... Today... Tomorrow is tomorrow.

I can't wait to get his new AFP count on Monday when he does his next blood count. Monday past it was on 52 and it should be on 7.3, but it was originally on 498 000, so we have come a long way. Its amazing how excited you can get over a blood test. As the tumour shrinks, the count drops, so every lower count is exciting and a great relief that the chemo is working still. In the beginning we weren't sure it would. Being a baby, they did not know. There has been a few kids where the chemo has not helped, so we were scared when we started. But so far the chemo is working fantastically. There are other chemo kids in the hospital, and they have amazing results too. I think Bobbinogs advantage though is his age. Being only 6 months, his cells divide and grow much faster, so the cells that the chemo kills, his body replaces quickly which is why he is handling the chemo so well.

Anyway, off to work now, will blog again when there is any news.

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