Well, it is Sunday night already. Missed a day. From being in ICU on friday night and having a very stable night, Bobbinog moved across to high care on Saturday. He continued doing well and on sunday he started with liquid (being water only). He really is tough. However he has had a really tough day today. His pain management meds were not managed, or should I say not given at all. His epidural got a kink in it and blocked, probably when the moved him, so it was not helping for pain. His panado he was given for pain, or was supposed to be given for pain at 11am was not given to him as he was crying, however the nurse signed that he did get it so he spent the day crying and in pain, until about 4pm when I had just had enough and I threw my toys big time and very impressively. Within 30minutes, the anaethetist has come to check his epidural which was when we found out it was blocked. The nurses very quickly gave him meds, his surgeon even came down to check on him, but by then he had settled, as his morphine dose was also upped. However, there is only so much we can take. Mike stays at the hospital with him at night as there is nowhere for us to sleep. All the parents at the hospital get given a mattress to sleep on at night except us. When my kid is screaming in pain, he gets ignored. We are going to arrange transfer to Panorama in the morning. I already have it in motion, we are just waiting for the drain from his cut to be removed. The surgeon told the nurses to rmove it at 5pm, not surprisingly it still has not been removed. The care he is getting is definately not up to scratch as to what I would expect. As he is stable, it should not be a problem to move him, however there are still many days left before we can consider bringing him home as he is only drinking water then he will go onto juice tomorrow and then onto formula the next day, but as he has no gall bladder now and they dont want to stress his liver he needs to go onto low fat food, so not sure which formula he will go on, but his oncologist will take over and she can advise us. So we have had a tough weekend but we dont mind as bobbinog is doing well, and we know he is going to do even better everyday, especially when we move him and he gets proper care and attention from the medical staff. Will advise tomorrow how he is doing.