Well, it has been a long time since I last blogged. Just checked my last entry. Bobbinogs bloods were done end June and all was well. Also noted it was when little Enrico passed on to being an angel, and also, Connor was going through a very rough time and the doctors had given up saying he would not survive a week....... Well, guess what!!! Connor loves life and he has proven the doctors wrong... again!!! Yay...Way to go Connor. Connor is doing well. His relapse he had, disappeared. When he went back for tests a week after the doctors said they could do nothing more, the relapse was gone and he had only the usual marks on his scan, the rest was not there. That is brilliant, wonderfull. This little guys is a proper fighter. He has had to do it for more than half his life already. He has just turned 9 and has been fighting neuroblastoma since he was 4, and with his fighting spirit, I know he is going to beat it.
As for the Bobbinog, he is doing well. He had his usual bloods on wednesday past and his AFP is way down on 2.2. Cool, remission now for 8 months and counting. However, the problem we have is that his full blood count shows that his hb is low. on 7.5 and it should be on 10.5. After further tests, we found that his iron levels are very very low. Should be between 11 and 13.5, but his are on 2. Not good at all. He is very badly aneamic. We put it down to too much milk being consumed by him, so he is now limited to 1 cup of milk a day which we split between 2 bottles, he then also gets iron supplements. Hopefully his iron will climb during the next 2 months, time will tell.
Not much other info really. Life is very busy, post chemo, actually more hectic than when we had to fit chemo in and half our time was spent in hospitals.
All the other onco kids are doing well too. We met with our oncologist on friday for our routine checkups. Next time round we are all going for sonar scans.
Our other kids are all well. Life has just moved on as if baby's treatment etc was all part of the big picture and a normal thing, which was one of the stepping stones in life, which it was for us..... a little rock, but we stepped over it anyway.
We were speaking the other day, and said its amazing how many people with kids, who were our friends / family pre chemo, have just dissolved out of our lives. Probably because they do not know how to deal with us having an onco kid, or maybe scared its contageous. Unlucky for them, as it was not their problem and had rhey stuck around, they may have learnt alot from our experience. As we did and we still are and everyone involved in our lives are, and are gratefull for it as we live in the real world now. We have a nice support network going between all the onco moms aswell, which all helps and supports.
Anyway, Will blog again soon, hopefully before the next bloods which are being done in october.
Also, please hold thumbs and pray for Connor. He has some tough treatments lined up for the next month to 6 weeks and will need all the support and prayers he can get. He is having a heavy chemo treatment done then he is going into a room for major radiation treatment. He will be in there on his own for 5 days, with his parents outside his door, only able to go in for 20 minutes a day. Thats going to be difficult for him and them. Lets pray for a very good result.
Will keep you posted.
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